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A TROUBLING DIAGNOSIS 

I have to admit I took it badly.  Not for long but badly nonetheless.  You’d think I could simply test out of the emotional part of this.  After all, I’m a professional counselor, a psychology PhD, an author and expert on human behavior and adaptability.

Wrong!

What set this in motion was the shocking number of times I tipped over. Once, after turning around quickly in a walk-in closet.  (How is it that I can repeatedly ride my new bike for 30 miles without incident but just fall over in my closet?)  Then, getting out of a car on my way to an important meeting.  Then again in my closet.  And again.  My own diagnosis: doing too many things at once; distraction.  My doctors’ diagnosis: peripheral neuropathy.

Peripheral what?  I’d never heard of it.

That may be because it’s most commonly associated with diabetes, which I do not have, and as a side effect of chemotherapy, which thankfully I haven’t ever needed.  Peripheral neuropathy (PN) is a condition that affects more than 20 million people in the US.  It usually involves pain, numbness or tingling (or some combination thereof), but in my case I don’t have any discomfort whatsoever.  It’s just that my brain doesn’t seem to know where my feet are when they are in close proximity to one another, especially when they’re turning.

There’s no cure for PN, but for some people—especially those with pain and tingling—a drug (sometimes Lyrica) is prescribed and may help with symptoms.  For me, the treatment is physical therapy and better shoe support.  That’s for my feet.  For my head, I needed some other things,  which I’m recommending to other PN sufferers:

  1. Get Educated. A good source of information is the American Chronic Pain Association, ACPA.org. There also may be support groups in your area. There’s no PN support group where I live, but it is discussed at diabetes support groups, so I may try those.
  2. Inform and educate your family and friends.  Let your loved ones know about your diagnosis. They already will know something has changed just by observing you, but may not know the cause.  In the case of PN, stumbling can be mistaken for having a drinking problem. Help your loved ones worry about what’s really going on and let them know how they can help.
  3. Have a heart-to-heart talk with your life.   I often say that there are a minimum of five of us living in my house at all times: my wife, me, our marriage, my life, and my wife’s life.  Each of them needs nurturance.  Each doesn’t always see eye to eye with the other.  My wife and I were already in agreement.  My life and I had some decisions to make.  What do we want our quality of life to look like going forward? How dedicated to being active and vital are we? What kinds of limitations does this diagnosis place on us and what do we want to do about it?
  4. Work seriously at whatever treatment process you choose.  I’d never had physical therapy before, and was surprised at how much work it is.  After the first few sessions, it’s easy to see progress and even easier to slack off.  Kind of like dieting.  Stick with your treatment for the long run, even for the rest of your life.  You and your life (not to mention your family and friends) deserve it.

I also now know from experience that there is one thing NOT to do.  With temporarily runaway emotions, I made the leap from a troubling diagnosis to OLD AND SLIDING DOWNHILL, which, of course, made it just that much more difficult for me to get centered again.  So:

  1. Do not succumb to the drama of the moment and translate your diagnosis into a confirmation that it’s the beginning of the end.   It’s easy to do.  This is where items 1-4 above come in.  They are all essential.

It’s likely that this won’t be the only opportunity I will have to react to a medical/social/financial/professional announcement.  I’m starting to think of it as practice for the ups and downs of life.  I’ve found a lot of meaning in a song performed by the wonderful Christine Lavin, with apt rollercoaster metaphors.  Be sure to watch Christine’s face as you are listening. Music and lyrics by Matt Alber. https://www.youtube.com/watch?v=Z8xgoa04SNY

 

4 responses to “A TROUBLING DIAGNOSIS ”

  1. Rick Searns says:

    I’d like to let you know even though I heard about your troubling diagnosis from you earlier, for the second time I am sorry that you have to deal with this, however I really like your approach. Having previously had physical therapy, I highly recommend following their instructions and sticking with the exercises they give you for as long as you can. I can testify from first hand experience that doing the exercises to solve physical issues really makes a big difference. Hopefully both the physical and emotional issues associated with the diagnosis will get continuously better day by day. I wish you the best.

  2. Jari Searns says:

    Hi George,

    Even though I too knew the story of your latest health “adventure” you always present situations so well. I especially loved the paragraph on your “five lives”…boy, how true is that for a busy married couple!

    Your philosophy is quite wonderful and if indeed (and I just know you will) you follow the prescribed “game plan” you will be a continuing happy and vibrant contributor to all around you…and we all need that contribution!

    I went through a similar experience when I had my heart attack. Now, because I follow the Doctors directives…I am a picture of health and staying on the regiment to maintain that health is as easy as putting one foot in front of the other…but carefully!

  3. Siri Allsion says:

    Thank you for the example and insights! And I see you are implying another axiom: maintain a sense of humor.

  4. George,

    I loved your recipe to manage this diagnosis. I also see too many people panic when they experience an age related health problem, and believe they are powerless to affect it.

    I hope you don’t mind, but I shared this blog with our own followers at iShoe.

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